11th May
Quite a long post, some bad and some good.
Well it's been a while since I posted probably because the last few months haven't been good in terms of how I've been. It seems that as time goes on, it gets worse living without Rebecca, I don't know why, I think I'll have to stop questioning it and just accept that's how it's going to be. Whoever said "times a great healer" must never have lost a child because they really didn't know what they were talking about. I get up most days hoping it's going to be better but it never is, the only thing that's better is if I can get through the day without shedding some tears. Rebecca hated to see me upset and she would be horrified to see me how I am now and I'm sorry for that, but I think it's testament to how much I love and miss her. (think she'd be a tad annoyed at me though - kick up the arse comes to mind)
There's so much I could write about cystic fibrosis and how it robbed Rebecca of her life but I won't because it hurts too much, suffice it to say no one knows how hard it is unless you have to live with it.
It's CF awareness month in the USA so I thought I'd do my bit and this is something feel very passionate about
For anyone reading this that has CF in it's family, make sure you get tested for being a carrier because this gene will be passed on. You only need to have a child with another carrier and there's a 1:25 chance the child will have CF, that is not something to be blasé about I can assure you. If you know you are a carrier you're partner can be checked and then you can make informed decisions if you're both carriers. I'm a carrier, so is my husband which means our brothers and sisters can be carriers., they in turn can pass on the gene to their children and so it goes on. As far as I know, it's a simple blood test possibly a mouth swab now, but checking can save a lot of heartache in the future.
On a more positive note,
My swim in Lake Windermere is approaching about as fast as I plummeted to earth in my skydive. It's 5 weeks today and although I've swum 2 miles in the pool twice I've still to get a wet suit and plunge myself into a cold water lake. Hopefully I'll have done this by the end of May. I'm more worried about doing this than the skydive because even though I've done the distance and I'm confident, there's no bottom in the lake as there is in the pool and I seem to have a habit of swallowing a lot of water and nearly choking. Also I don't think I'll look pretty in a wetsuit, goggles and a nose clip, maybe people could pay to see the pictures as an extra way of raising money!!
On that note, please visit my web site below and sponsor me, I take any amounts big or small, all is appreciated.
http://www.justgiving.com/Sue-Marley-MBE1
If you can't donate, I would appreciate you sharing the web site with your friends for awareness as well as raising money -thanks :)
My media volunteer work is coming along, I've done a few stories now and had one published in a couple of papers, this story generated someone making a donation of £25 after seeing it in the Yorkshire Evening post. :)
Educating Yorkshire are playing in our cricket match on Sunday 29th June at Ackworth cricket club Wakefield Road Ackworth. Becci's CF X1 versus Jonny Mitchell and his team all to raise money in memory of Rebecca and cystic fibrosis. Please share with your friends, starts at 12 noon it's a fantastic day includes food, bar, bouncy castle, free entry raffle auction and more. I'll mention this in my next post.
If you've got this far, thank you for reading, sponsoring and sharing.
Toodle pip for now.
Sue X
