CF AWARENESS WEEK

I thought I'd post today as it's the first day in CF Awareness week in the UK.
CF is a genetically inherited and there are 5 babies diagnosed and two young people die every week from the illness. To suffer from CF both parents have to be carriers of the gene, or you could just inherit the gene and be a carrier yourself. Unless CF is known about in your family, it could pop up any time if two carriers meet, marry and have children. There is then a 1:25 chance in each pregnancy of the baby being affected by CF. If it's known in the family at least you can make an informed decision about having children. In our case, CF popped up in Rebecca and having looked back in the family, we could guess but only guess who may have had it. 

I am eventually doing a tab on this blog about how CF affected us and what it was like for Rebecca and us to live with, so I've decided to let you read the blog below, which is from another person with CF who is currently using a new drug that's been developed and seems to be having a good effect on CF. Unfortunately, this drug can only treat 5% of the CF community which isn't a lot. This is the reason I pester you all to support my fund raising so that other drugs can be developed to treat ALL CF sufferers.

http://cocktailsandcreon.blogspot.com/

You will hopefully see some pictures in this blog of lungs as they deteriorate and you'll see how bad they look at 35% capacity, Rebecca lived with lungs at this percentage for probably the last 12 - 18 months of her life and believe me it was a struggle. So please have a read of the guest blog and spread the word whenever you can.

I have built the blog a little more so it's coming along but it will be a while before it's finished.
Thank you to anyone who has a read.
Tara for now XX