26/1/14

Ups and downs and new focus's
My new focus is communications volunteer with the CF trust.
I went on a training course to Manchester yesterday and really enjoyed it. I met 6 other people who have volunteered all with connections to CF. A parent, uncle and cousin to a person with CF, someone who had lost a friend to CF and lady who has CF. All have the same thing in mind - wanting to help find a cure for this horrible illness. The job will entail helping the Regional Fundraising managers get information into the media about events or cases of interest. I'm looking forward to seeing how it evolves and I think it will be up to me how much I push my involvement, hopefully it will come in handy for advertising our events.
Can't wait to get started.

Great North swim training
I've been to the baths 4 times now and so far have managed to swim 64 lengths with Brogan and 32 with Maggie. Stamina wise I didn't find the distance difficult but my shoulders and neck really ached so I hope this gets better with time. If it doesn't I'm sure I'll  put up with it like I did with running, It can't feel worse than how I felt after the Great North Run.
For me it's all about the challenge of pushing myself to my limits as most CF sufferers have to do every day of their lives just to live relatively normal life. I also like to give people value for money when I'm asking for sponsorship. This leads me nicely on to telling you I've set up a just giving website and is open for donations:) Please free to visit anytime and give me your money.
http://www.justgiving.com/Sue-Marley-MBE1

Ups and downs - just getting it off my chest
I'm really struggling at the moment, feeling down and unable to pick myself up. The weather doesn't help being so dismal all the time but I just can't shake off the depth of despair I feel at losing Rebecca. Some days are much worse than others but the loneliness and emptiness I feel never seems to get any easier, maybe it never will, I suppose I'll eventually just learn to live with it. I get on with my life the best I can filling my time with work and charity stuff and that helps because at least I'm being useful especially where CF is concerned, having said that, I hate the bloody illness with a vengeance, I just don't want it to carry on taking young lives. I try to be as up as I can when I'm with other people because It must get on their nerves being in my company if I'm down in the dumps all the time. Poor Paul, he has to put up with me being a morngy bugger but I know he understands because he feels much the same, he just deals with it better than me and thank goodness he does or we'd both be in trouble.
But, I like to be optimistic and tomorrow is another day and you never know we might get a bit of sun to cheer me up.

Toodlepip for now and thank you for reading.
Sue X

Oh before I forget ,if you want to write a little memory about Rebecca FB me and I'll include it on page 2 of the blog