27th June 2015

CATCH UP

These past few weeks since Rebecca's anniversary it's been a bit manic trying to get everything sorted for the cricket match. To say there's been a few ups and downs this year is a bit of an understatement and my enthusiasm for fund raising definitely took a knock and I have quite a few times seriously considered packing it in. The loss of more young people to CF this week is what's made me rethink and that giving up is not an option. Without fund raising, a cure won't be found and more young people will be lost and more families will be  devastated by that loss. Having endured losing my only child and still continue to deal with that loss, I can't turn my back on the thing that may one day make CF stand for CURE FOUND. So for now, with the support of Paul, Jill and our family's and friends It's business as usual. That brings me nicely on to :-

CRICKET MATCH

This year even though we had to contend with showery and cool weather, father's day, Pontefract races, reduced numbers helping and not as many people coming, we still had a great day and raised £2457. If you came and have also been in previous years, you'll know what I'm talking about with reduced numbers. You'll also realise that we were very generously supported by the people who did come and for that we are extremely grateful. I've put a few pictures below.

 

 HEAD SHAVE

Well I did it and I've got to say It wasn't as bad as I expected. I didn't shed a tear but one or two of my family and friends did. Many people have said I'm brave for doing it but I don't think it's brave, crackers maybe, but not particularly brave. It didn't hurt, I didn't do anything physically myself, It didn't take any effort once I'd decided to do it, someone else shaved it off for me. The only doubts I had was about my looks and in the grand scheme of things that's not much because lets face it, in a couple of months it will have started growing back and I'll look like my old self again.
I consider brave to be kids like Rebecca with cystic fibrosis who on a daily basis face the constant challenge of living with this dam illness. They live their whole life having to organise every single day around CF with the knowledge that choose how compliant in treatments they are, in all likelihood they will have a short life. The amazing thing about Kids like Rebecca is that they do not let CF define them, they just get on with it, meet it head on and then live life to the fullest they can and enjoy every minute.

That to me is brave.

Here's a few photos

 

 

 

 

Hopefully with just giving and offline sponsors I'll manage to raise £450 for the head shave, this of course can be boosted by following the link below :) 

 http://www.justgiving.com/Sue-Marley-MBE2


It's on a sad note that I finish my blog, On Tuesday I found out that Josh Woodlock who was 19 and waiting for a double lung transplant had lost his battle with CF and had passed away in his sleep. Josh even though really ill had made a big effort to come and support the cricket match. He along with his older brother Adam who also has CF and plays for the CF team and his family have been there supporting us for the last several years. I was so sorry to hear the news and having only spoken to Josh a few days earlier was stunned. My thoughts at the moment are constantly with his mum and dad and all his family as they try to come to terms with what has happened. RIP Josh breathe easy.

Thank you for taking the time to read my blog
Sue x